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Gorean Roleplay => Gorean Roleplay General Discussions => Announcements and Events => Topic started by: Hesprit of Turia on October 25, 2006, 12:54:27 AM

Title: Information about Hannah (topic renamed) 3/3 update
Post by: Hesprit of Turia on October 25, 2006, 12:54:27 AM
Okay, as most of you would know, I am not one who would normally come to a message board with a request of this nature, but it is a situation that is tugging at even My heart.

My neighbor, one of maybe three or four people in the building where I live who is a decent person, got some shocking news yesterday.

Her 4 yr old granddaughter, Hannah, had been having stomach pains among other things.  Her parents took her to the local ER after "normal" home treatments hadn't provided any relief, and the hospital here found some irregularities in her blood tests, then had her transferred to Children's Hospital in Pittsburgh.

At Children's, the diagnosis was confirmed, Hannah has leukemia.

This is a little girl who is shy with strangers but a spitfire with those she knows.  Cute as a button and funny as hell.

The family is devastated ... her grandmother has always been the one to laugh no matter how bad things appeared, and this woman who has always laughed even about her own stroke, doesn't even smile.  Hannah's mother is completing her schooling as a nurse, which is sometimes a disadvantage in a case like this ... you're always taught the worst case scenarios first, because that's what a medical professional is expected to deal with .. so it's probably 10 times as frightening.

So the bottom line is this ... I'm asking for two things.

First, whatever your faith or beliefs, please keep Hannah and her family in your thoughts, prayers, meditations, etc.  They will all be needing them.

Second, remember that things like this can happen to anyone.  If you are healthy, consider going and being tested as a possible donor.  Obviously, in this case, a bone marrow donor .. which in reality is the simplest and least invasive type of donation you can offer, but since we're on the topic, consider organ donation as well.  As some of you may remember, I, Myself, am an organ transplant recipient, so I know what a miracle it is to receive that phone call.

Someone, somewhere, will benefit from your caring.

Thanks everybody, in advance.

Tony
Title: Re: I'm not one to normally do this ...
Post by: RAGNAR on October 25, 2006, 01:08:14 AM
the girl and her family are in my thoughts and prayers.
 :'(
Title: Re: I'm not one to normally do this ...
Post by: Taryn on October 25, 2006, 03:06:44 AM
Hannah and her family are in my thoughts and prayers... I will look into the bone donor test again, I did this once before about 17 years ago...
Title: Re: I'm not one to normally do this ...
Post by: LadyMuse on October 25, 2006, 08:49:51 AM
Added to My thoughts.



LM
Title: Re: I'm not one to normally do this ...
Post by: Pollypocket on October 25, 2006, 10:27:56 AM
Have lifted, and will continue to lift up in prayer, the family and doctors who will be/are ministering to Hannah. You are a good neighbor, Tony. God Bless you too.   :)
Title: Re: I'm not one to normally do this ...
Post by: prism {*RgR*1*} on October 25, 2006, 02:03:48 PM
She'll be in the hands of God who listens to my prayers... and we all know that whenever two or more are gathered in His name..

Title: Re: I'm not one to normally do this ...
Post by: Hesprit of Turia on October 26, 2006, 01:43:47 PM
I want to thank everyone who has responded, and to pass along the thanks of Hannah's grandmother and family.  So you're aware, I have been printing out the responses for them.

A little bit of an update, Hannah began chemotherapy today, and they are looking at a 2 year regimen.  Unfortunately, from what I understand, the type of leukemia that Hannah is diagnosed with can not be treated with marrow transplants, however the doctors say that this was found very early and are saying that there is a 95% survival rate.  She was also apparently found to have a mild case of pneumonia, but again, the doctors have said it was not unusual in a case like this, and they are prepared to handle it.


Hannah has continued to be a trooper.  Her mother was telling how she has not cried or thrown a fit about anything, including the chemo itself, the bone marrow test and a second spinal tap.  The only thing she does is, when anyone comes in with anything to do with a needle, she tells them, "I don't LIKE that!!"   But then she will say, "That's the rules, I gotta follow the rules, but I don't like that!"

Anyway, thanks again to everyone and please continue the thoughts and prayers, not only for Hannah but her whole family.
Title: Re: I'm not one to normally do this ...
Post by: kadi{MTC} on October 26, 2006, 03:59:00 PM
kadi lights a candle to Freya

may the spirits watch over this child and her family

kadi
Title: Re: I'm not one to normally do this ...
Post by: RAGNAR on October 26, 2006, 06:38:51 PM
The thoughts and prayers will continue for her and her family.

HANG TOUGH HANNAH!!!
Title: Re: I'm not one to normally do this ...
Post by: prism {*RgR*1*} on October 27, 2006, 03:32:47 PM
*smiles soft*

tell Hannah I said to make the nurses a trade.

They always say the needle will just be a little "pinch*... Tell her to see if they will trade letting her pinch them a little whenever they want to poke her.. it might make a good game out of it for her and help her relax a little more about the needles..

At any rate, she and her family still have my thoughts and prayers..
Title: Re: I'm not one to normally do this ...
Post by: Tracer on October 29, 2006, 12:55:08 AM
They will be in my prayers...tell them to keep the faith....and remember there will be some ups and downs going through the processo and treatment, and there will be a lot of fear worry to shake one's faith , I've been through lukemia AML...it can be beaten with bonemarrow transpllant and treatmen...prayers do help. May she receive the blessing she needs from our Father to take this nasty disease from her body. Everyone should walk through the childen's cancer ward of a children's hospital. It will change you,

Tracer
Title: Re: I'm not one to normally do this ...
Post by: -Alice- on October 29, 2006, 01:46:20 AM
Several candles are light for Hannah and her family... The prayers are up now here at my home... I hope, with all my heart she recovers... -Whispers softly- Hannah, I don't like needles either... I use to run from them everytime i see one... Hang though Lil girl... You can do it...  :-*

Alice
Title: Re: I'm not one to normally do this ...
Post by: Hesprit of Turia on November 02, 2006, 04:55:39 AM
Hi everybody!

Okay, here's the latest update on Hannah.  She has completed her initial 8 day chemo regimen, after which the doctors ran test to check for effectiveness.  In short, if the tests showed it was working, she would go home and a regular schedule for treatments set up, if it had not had any effects, then she would remain in the hospital and a second 8 dau schedule would begin.

**drum roll**

So Hannah will be returning home either today or tomorrow.  According to the doctors, the initial tests are positive, so Hannah will be able to come home and she'll be put onto a schedule of returning to Pittsburgh once a week for her treatments. 

The doctors said that they could arrange for the treatments basically in three ways ... she could have them done at the local hospital (the one that had seen Hannah twice and sent her home with prescriptions, then wanted to do the same thing again until Hannah's mom told the ER doctor she wanted her transferred, the doc argued, then finally said okay, he'd arrange it for the next day, to which mom said, "oh no, you get us the hell out of here.  Get on the phone, make the calls, we are going TONIGHT ... DO IT!!) ... well, I'm betting you can guess how well that idea was taken.  *lol*  Can we tell where Hannah gets her feistiness?

The second option was to arrange for the treatments in the next town over, where they actually have a cancer treatment center, however the doctors said that this center is set up for adults.  The arrangements could be made, and any changes or adjustments made, but the bottom line is Hannah would be the only child receiving her treatments there.  So, the family didn't need long to decide that they would make the trip, three hours each way, to go back to Children's.

Hannah's family has asked Me again, to pass along their thanks for the continued prayers and well wishes ... this has all been a hard situation for them to accept, but they seem like they're taking it a day at a time and doing the best that they can.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on November 02, 2006, 05:21:20 AM
OUTSTANDING!!!

Will continue the prayers for Hannah and her family.

It is unfortunate the fighting and such that seems "the norm" anymore to receive even the minimal acceptable levels of healthcare. Is it the bottom line profits? Is it lack of adequate applicable education for Physicians? Is it simply a matter of many Physicians just not giving a damn so long as the paycheck comes in?

I have had Physicians come to see me when hospitalised informing me of procedures they claim would be of great value to me and how willing they are to perform them. As soon as I inquire if these are covered by my insurance or how much my insurance agrees to cover, the Physicians beat feet never to be seen or heard from again. Who knew.....

One day at a time really is the only way to cope with health matters of any magnitude.

It is obvious the love Hannah's family has, and hopefully that love will be a long lifetime's worth.

Hannah...

There will be goodtimes, and there may be scary times, but always remember your family loves you and will be there for you. Those of us that are here praying for you have never met you, but we are also pulling for you. Just keep smiling, remain "feisty", and never doubt for a minute you will beat this!

*Sends you a big caring bearhug*
 :-* ;)
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: prism {*RgR*1*} on November 02, 2006, 04:35:56 PM
*smiles from my heart*

I am sure that Hannah's family doesn't mind a drive like that for Hannah.. I don't know of anyone that would.. She continues to be in my prayers.. Such a strong willed determined little one can win this fight.. and it will make her stronger..

send her big woobie hugs please, and tell her that angels are watching over her..

Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: ~*jale*~ {Lil} on November 03, 2006, 11:05:49 AM
Having just read this, I too will hold Hannah, her family and her doctors in thought and prayer. 

It's wonderful to hear of one so young with the heart of a Gorean Free Woman. 

Keep strong Hannah.

Sending tender hugs and tiny kisses for her cheek.

Thank you for bringing Hannah to us.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on December 24, 2006, 09:12:40 AM
Anything further on This?
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Hesprit of Turia on December 24, 2006, 01:48:03 PM
Hi everyone .. I haven't made it back to these boards in a little bit (missed Your private message asking for the same reason, Ragnar) but I was just asked for an update somewhere else and thought I really needed to pass it along.  Came here and found the question was asked here as well ... so here we go.


I was asked today if there are any new updates about Hannah. I have to say I'm sorry for not having kept up to date here for those who have been kind enough to send their thoughts and prayers and to keep watching the situation.

As of today, Christmas Eve, Hannah is home, and they are planning a very small family get together at the house. Hannah has been sick lately, a combination of the chemo and, the doctors believe, a "bug" she may have picked up, but apparently she is doing well enough to be at home instead of in the hospital.

I do know that, at one point, Hannah's blood tests were a bit low, so she had to go in and they adjusted the levels of her chemo .. it seems to have helped, however she has started losing her hair now. The solidarity, though, is great. Hannah's uncle, a truck driver, has promised that when she loses her hair, he will come home and go straight out to have his head shaved ... and her dad has said the same thing. (I don't know if they'll include her little brother, but it's possible)

The community has been involved too .. a fund drive and a blood drive with the blood ALL being tagged to go to Children's have both been held with a lot of success.

The best thing I can report, though, is that Hannah's spirit has not been dampered much. It's not as "new" now, but she is still more than willing to speak her mind, and she shows no sign of being ready to let this get her down at all.

Thanks, everyone ... the interest and support is great!
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: prism {*RgR*1*} on December 24, 2006, 02:58:45 PM
please extend our wishes to Hannah and to her family for a blessed Christmas and New Year.. She continues to be in thoughts and prayers..  .. I admire her courage and her spirit and I learn from her..

love to them, and thank you Hesprit.. for keeping us updated..

Merry Christmas

woobie
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: -Alice- on December 24, 2006, 05:17:36 PM
Thank you for the update Hesprit... I was looking for you the other day at your room o ask you the same...

Hannah continues in my prayers, please, let her know that i send Santa directly to her place to deliver our love and best wishes today and always...

Merry Christmas...

Alice...
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on December 24, 2006, 09:17:13 PM
There isn't much more that I can add to woobie's post.

Just give her an extra hug from me when next you see her.

She isn't forgotten and I am still pulling for her!!!
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Buddha on December 25, 2006, 12:03:27 PM
It's good to hear Hannah is home.

Merry Christmas to you and her and your family.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Jay on December 25, 2006, 06:18:21 PM
Give Her multiple hugs from Me please!

She's still in My thoughts.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Taryn on February 08, 2007, 03:31:40 PM
I hope Hesprit isn't upset that I posted this here, as I found it on the AR boards and I thought everyone who has been reading up on this would like a little update... ~soft smile~



Posted 2-07-07

Well, folks, as you can see, I'm not that great at keeping updates available on Hannah's condition, but I wanted to bring you up to date on the latest.

First of all, until recently, Hannah has been doing pretty good. She was also approved for a trip to Disneyworld by the Make A Wish foundation, which is scheduled for March.

More recently, though, there have been some concerns with Hannah's bloodwork. Her blood counts have been a little low, causing some adjustments to her chemo ... but her spirits have been good. She was running a fever last Friday, which prompted a trip to the hospital as a precaution. She was kept overnight, given a transfusion to help the blood counts, and released the next day after a big improvement.

Unfortunately, I found out this afternoon, that apparently the problem was not completely taken care of like everyone thought, because she went back to the local hospital, again with a fever. This time, it was enough that she was taken back to Children's hospital in Pittsburgh by helicopter. Apparently, she was in decent sprits during the flight, even commenting that it was too bad her little brother didn't get to fly too.

I don't have much more information, but I'll update when I do find out more. Once again, though, please keep Hannah and her family in your thoughts and prayers.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: prism {*RgR*1*} on February 08, 2007, 04:18:12 PM
*nodding quietly*

Hannah continues in my prayers.. such a tough little angel..
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on February 09, 2007, 06:35:35 PM
Thoughts and prayers will continue.

Hang tough Hannah!!!
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: -Alice- on February 10, 2007, 06:59:45 PM
She continue in my prayers...

*Light a candle for her*
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Taryn on February 11, 2007, 02:18:05 PM
Another update posted on the Alter Realm boards...

A little bit more information I received today on Hannah's condition:

She is still in the hospital, and is expected to be there at least through the weekend. Apparently there are a couple of issues going on .. one is a mild infection, something that would be no more than an irritation for most, but with the leukemia and chemo, it's obviously a bigger concern. The more important issue, at the moment, though, is her blood counts. It seems that Hannah's platelet count is rather low.

For those who don't know, platelets are the part of the blood with deals with clotting and preventing blood loss in case of an injury. Since chemotherapy reduces the body's natural ability to produce platelets, a low count is a concern. At this point, Hannah's count is around 200, while the hospital says it needs to be at 1000 for them to begin her chemo treatments again.

The main thing, at the moment, though, is that Hannah is at Children's Hospital, where she'll be getting the best treatment she can get around here ... so hopefully I'll be able to bring more good news soon.

Thanks for the continued thoughts and prayers everyone!
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on February 11, 2007, 06:08:16 PM
Are blood transfussions an option to raise the platelets and count?

There has to be some options available.....  :'(
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: -Alice- on February 12, 2007, 06:25:12 PM
*Nods* I was thinking in the same... Here in Mexico there's something like a transfusion but just with platelets... I hope she can get something like that..
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: prism {*RgR*1*} on February 12, 2007, 11:17:23 PM
*rents a cross-country bus*

Cali to the Carolinas - - Last stop, Pittsburgh Children's Hospital
Everyone roll up your sleeves and prepare for the needles

Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: -Alice- on February 12, 2007, 11:29:15 PM
I wish I could do it woobie, but I'll sent that blood from here directly in a private plane... My brother agreed to join me to do something about it, we will ask in one of the hospitals here and witha  few doctors friends of us about that matter... She has to be ok! She has a life to live....
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Taryn on February 13, 2007, 01:20:03 AM
I have sent a note to Hesprit about the want to help out... ~smiles softly as she slips out quietly, thinking about the beautiful girl named Hannah~
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Shylina Marie on February 13, 2007, 05:23:13 PM
as  parent that completely supports the childrens miracle network and the make a wish foundation.  I am gonna jump on the band wagon here and let you know that there are so many, so very many children, and teenagers that you can help with the simple gift of donation, be it blood , money , or Time.   as a parent of a child that is still classified as having a life threatening condition, I can't express the gratitude of the parents and the staff, let alone the children that recieve the benefits of these donations.  fortunately for us, my daughter is right now healthier than she has been in her life and upon our last visit to the cardiologist was told that one day she will be able to become a mother.  He gave her the one wish she could possibly have...... the ability to be NORMAL.  thats what these kids want the most... is just normal. we all have to live a life within limitations some of us with more limits than others... so from a parent...... THANK YOU for doing anything you can.... no matter how big or how small it may be.

 jenn and I had talked about it.  She qualified for the make a wish foundation, but she said mom.. I'm gonna live no matter what..... so I am not gonna let them spend money on me when they can give someone thats not gonna be around as long as I am  the gift of a lifetime.. the gift of those memories with their moms and dads.   What jenn doesn't know right now is that her dad and I are gonna give her that gift..... she's only asked for one thing.... so come christmas of 2008... you guys are just gonna have to be without me... because we are gonna go spend christmas in Paris.... that is her dream and by god she is gonna get it
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Shylina Marie on February 13, 2007, 05:28:05 PM
and another quick note..... yes they can give platelets..... they want good live cells to work with as well... so most times they want to harvest 48 hours in advance so they can easily put the cells in stasis.  but this is the thing..... anyone.... anywhere can give the gift of blood.... all blood types are needed but most especially those rare ones and the most commons...... contact your red cross.... donate in that childs name and give them the hospitals name.... alot of time the familys incur alot of costs due to the face that  blood and processing blood and its components is so expensive.... I have the same 10 donors for jenn when she has to have a procedure.... and trust me... not having to pay for 10 units of blood cut the cost of  an open heart surgery way down.  so contact your local and let them know you are donating in a childs name... they work through the childrens miracle network too and that can help ease some of the burden off that family
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Hesprit of Turia on February 13, 2007, 08:17:05 PM
Hi everybody!  First I apologize for missing the updates here on the WM board, and thanks to Taryn for making them and letting Me know about the posts that have been made.

I finally got a chance to talk to Hannah's grandmother today for a little more of an update ... although it's not complete, it does tell us a little bit more of what's going on.

At this point, Hannah is back home from the hospital. They have stopped the chemo for now, to give her body time to rebuild the platelet levels. Hannah's fever has gone up and down a little bit .. obviously, it's down enough to let her go home, but they do have to keep an eye on it and return to the hospital if it jumps again.

I'm not sure what other treatments they may or may not be using right now, but at least she is home so that's a step in the right direction!

As I'm reading all of the talk of blood and platelet donations, I'll be honest.  I'm not sure exactly what the status of Hannah's need for this is right now.  Since she is home now, I'm under the impression Hannah is not using transfusions right now, although I'm not certain if they will be doing so again.

What I would suggest, though, is for all of those who want to be able to help, consider doing exactly what you're thinking of, but locally.  Children with leukemia are all over the country, and yes, the world.  Not only the blood donations but as someone else mentioned, marrow donation is a big need everywhere.  Maybe you can't help Hannah, but maybe there is someone else.

As an organ transplant recipient Myself, I know first hand what it's like to be told that what you need is now available.   I know that whomever might benefit from your generosity will never be able to thank you, and knowing Hannah and her family, I honestly believe that they would be just as happy to know that somebody, somewhere, is being helped in Hannah's name.

Besides, as Hannah herself said early on, "there are other kids who are more sick than me"  It's a thought that really doesn't hit home, until it comes from someone this young.

Thanks for all the interest and concern, everybody!
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Taryn on February 13, 2007, 11:07:32 PM
would try to donate or be tested, but with the medications running through my system, I doubt they would allow me to... so for now, I am content to keeping her in my thoughts and prayers, and keeping a candle lit for her... ~smiles softly~ and you're welcome Hes..
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Shylina Marie on February 14, 2007, 06:45:26 AM
Taryn I am in the same boat due to all the meds and med changes I have had..... so I can pray....
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Hesprit of Turia on February 14, 2007, 07:57:02 PM
Absolutely, prayers and good thoughts are always important as well.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Hesprit of Turia on February 17, 2007, 07:02:02 AM
Hannah has been progressing, I'm happy to report.  As I said before, she has been home now for a couple of days and, although I just found this out last night, her numbers did increase to the point where they were able to give her a double chemo treatment during her last check.

At this point, they continue to watch Hannah for fever or any other signs of problems, but she's at home where she belongs.

If I understand correctly, she has about another week, possibly two, on the scheduled chemo rotation, after which she will be given a period of several weeks with no treatments scheduled.  For those not familiar with it, this is apparantly a standard treatment plan, so it seems they have chosen not to alter the plan itself, which I'm taking as a good sign.

It also means that, barring any other complications, Hannah and her family should be able to make their trip to Disney World without incident.

What I found interesting was that, despite the things that have been going on so far, Hannah's biggest concern right now is to insist that her mother confirm she will get to "be on the big yellow bus next year!"

Like most kids her age, it seems that Hannah is determined to be just like all the other kids, and she's not ready to listen to even the possibility of her not riding the school bus to school when it comes time to start in September.  And, for the record, the doctor's at Children's Hospital, have told Hannah's mom to go ahead and get her registered.  They already know there will be days she is not able to go to school because of her condition .... she will miss days, but the doctors say that there is no reason not to plan for everything to be as normal as possible.  They can make adjustments later as needed, but plan for normal now.
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: Taryn on February 17, 2007, 07:21:14 AM
~sighs softly~ yes, I am very well aware of the treatments for all sort of cancers, it runs abundant in my family, both sides and I have watched friends go through it as well...

~smiles brightly at Hannah's biggest concern~ if I were her age, I think I would be worrying about that as well, as it is the most important thing next to Disney World.. ~nods lots~

Hes, give her a big huggle from me... thanks ~smiles~
Title: Re: I'm not one to normally do this ... NEW UPDATES
Post by: RAGNAR on February 17, 2007, 08:47:56 AM
The single most fascinating thing to me is no matter what happens to the body, the spirit lives on.

The body can be ravaged by so many things, torn apart and wasting away, yet the strength of heart and spirit is beyond touch of these things. Only the person themselves can allow the spirit to be hindered in its zeal and determination.

In time, even the body can reach the end of it's days, yet the spirit lives on forever.

For those who believe, there is eternal life, but even for those who hold no such belief, the spirit still lives on in those who remember and cared.

At times... even that unconquerable spirit, that determination is enough to continue on in the face of adversity. I have seen it. All of us have seen it. Many of us have even faced situations where there seems to be no hope nor escape from impending doom. Yet somewhere a small spark begins. The drive, the determination to accomplish that which seems so far beyond our grasp.

It is this determination.... so pure... so strong... that can make all the difference.

I believe Hannah will ride that big yellow bus.
Title: Information about Hannah (topic renamed) 3/3 update
Post by: Hesprit of Turia on March 03, 2007, 04:57:14 AM
Hi folks.  Yes, I renamed the topic for two reasons .. it's more recognizable for those who have been following this, and so it's easier to see when new info is added.

There is not a LOT to report at this point, which is actually a good thing.  Hannah is still doing reasonably well after her difficulties not long ago.  She is currently on a 5 week break from chemo (standard part of the treatment schedule) and is as excited as all get out.

The "Make A Wish" trip to Disney World is coming up.  Obviously, as I think everyone understands, I'm not giving any exact dates or things like that, but the trip will take place during this break from chemo.

I have to put in a plug here for "Make A Wish" since I've found out more about what all they provide.  For example, when I heard they were sending Hannah to Disney World, I figured they would pay for the flight, pay for the tickets for a day, maybe two, probably pay for reasonably inexpensive hotel accomodations .. things like that.

Get this ... this is My understanding of what "Make A Wish" is providing .. and this is their standard:


I don't even know if this is a complete list, but let's face it, this is way more than I would have expected to be provided.  I know that Hannah's mother, when finding out what all was provided, made the statement "OMG, I feel guilty accepting all of this!"  (Keep in mind, this is a woman who was well into her third or fourth year of Nursing School, at the top of her class, and had already been asked by hospitals where she had done clinicals, to be sure to come and apply with them as soon as she graduated ... and because her daughter needed her, she wound up dropping out of the classes.  Her sacrifice was nothing, it was just what she needed to do, but seeing others do this, she has a hard time understanding)

The Make A Wish Foundation provides this type of service to children all over the country, and as you can see, when they fill a wish, they do it up right.  They try to make certain that neither the child, nor the family, has to worry about anything at all, at least for this short time.  As most of us, I've known about "Make A Wish" for years, always thought it was a decent program.  Now I'm impressed, and they have moved near the top of My personal list of charities (of course, for personal reasons, the "Gift of Life" program, supporting transplantion services, is at the top)

Anyway, a little bit of update, a lot of "plug" but that's what I've got for now.
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: Ash on March 09, 2007, 10:53:17 PM
I sat reading this and it brought back many memories. M" Brother in law some 9 years ago was diagnosed with this though a different from as well, given a less than 50 50 survival chance. They found his also by " mistake " as he had hepititus as well.. if not for that we would have found out to late as his was moving quickly though his body, noone knew.

After months of treatment that I wont even go through the effects it had on his body, He was told at the tender age of 17 that he IF SURVIVED this, would never have children, life would never be the same for him as for everyone else.

That same said young man is now a survivor of  this form of cancer, after 5 years he was considered Leuk. free. He is the proud father of 2 children and yes they are his chuckles.. his body that doctors said would never be the same is in better shape from working out than most 16 year olds. And currently He is working on his singing career.

I guess the reason I felt  I should write this is to give alittle living proof that God is out there, in whatever form Yyou see Him or by whatever name Yyou call Him. He can cure this, He did for M' Brother in law. Doctors no matter how great they think they are are not working alone.

Also, sometimes when life gives us such curves, it is good to see the spirit moving through Us.. as I have read through this passages.. truly Wwe are not alone.

Queen Ashura
Proud Wife of King Drago
Emaine Macha

aka Gina
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: RAGNAR on April 17, 2007, 02:14:24 PM

How is Hannah doing?
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: Jay on April 17, 2007, 04:31:55 PM
Also I'd like to ask how Hannah's Easter was as well. -s-
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: Taryn on April 17, 2007, 08:18:38 PM
There hasn't been another update on the AR board either since the last one last month... I am also curious to know how she's doing... ~smiles~
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: RAGNAR on August 08, 2007, 11:34:18 PM
Any new info as yet?
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: Taryn on August 19, 2007, 09:35:54 PM
**got an update on Hannah from Hesprit**

Hannah, for now she is doing well .. she had a period of time where a couple of infections and flu like bug were making it hard for them to give her the chemo, has spent a few brief periods in the hospital, but right now is reasonably healthy, and her spirit has not dimmed, so that's a good sign.
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: RAGNAR on August 19, 2007, 10:28:18 PM
Very good. *S*

Hannah will continue in my prayers. *S*
Title: Re: Information about Hannah (topic renamed) 3/3 update
Post by: -Alice- on August 24, 2007, 05:37:54 PM
She will continue in my prayers too...